My friend from law school asked me to post this message. Please keep Baby Mayan and her family in your thoughts and prayers!
Baby Mayan is three months old and is about to leave to Chicago to see a number of doctors and specialists. She has three health concerns that have been weighing on us (and her) and we are excited and nervous about getting them treated. What is wrong with baby Mayan? She has an orbital hemangioma (fancy name for a collection of blood vessels near her eye) that is growing fast. This mass is putting pressure on her eye, which has pushed it out of shape to such an extent that she cannot see very well. If we do not treat this soon there is the risk that she will never be able to see out of that eye. Therefore, we are taking her to Children's Memorial Hospital in Chicago to have it treated by their dermatology specialists. Please pray for her as this procedure involves a number of tests (some that need to be performed under anesthesia) and a brief hospitalization. As her mommy, I am nervous for her, but trusting that God will look after this precious little one.
On a less scary note, but still worrisome, Mayan has been having diarrhea since July 10th with no end in sight. She is going to be worked up by the gastroenterologists at Children's Memorial Hospital as well, to see if they can find a solution. I would LOVE to be able to feed her something that does not make her little tummy hurt and give her diarrhea. She is thriving... but very sad after meals and has terrible diapers. That can't be right. Also, Mayan squeaks. Yes. You heard that right. More technically speaking she has strider, and we are not sure if it is due to tracheomalacia or a laryngeal hemangioma. Because of this she is going to have to have some tests done to make sure her airway is clear. Not fun. Involves putting a scope down her nose and looking into her throat and down into her lungs. She had it done once before and I had to hold her during the procedure. Not looking forward to that again.
If you would be willing to pray for our sweet baby Mayan I know that our family would be SO grateful! I created a blog that will keep people up to date on what is going on with her as we travel and get treatment performed this month. The address is: http://mayansadventure.blogspot.com/
Like a waterfall in slow motion, Part One
3 years ago

1 comment:
Thanks Ali! I appreciate the support. You are such a good friend (and even though we never see each other anymore I still think you're GREAT)!
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